FPIES · God is in Control · Surgery · Uncategorized

FPIES and Surgery

As an allergy mom I always have to be one step ahead, constantly thinking about what could happen or potential dangers for Porter. Surgery is no different. You would think that sending your child into surgery would be one of the safest places for them, from a FPIES aspect, but that is the farthest from the… Continue reading FPIES and Surgery

First Birthday · FPIES · Uncategorized

A birthday party….FPIES Style

Planning birthday parties for my kids has been one of my favorite things to do since becoming a parent! I know that right now they could care less about decorations, what their cake looks like or who all is at their party but I just love it. I love picking the theme, colors, spending hours… Continue reading A birthday party….FPIES Style

Doctors Appointment · Fear · God is in Control

The rainbows will come!!

Monday afternoon we met with our GI Doctor to discuss the upper/lower scopes and what our next steps would be. I knew going into this appointment that we probably wouldn’t get very many answers, if any, and it probably wouldn’t be very eventful. To start out the appointment was at 4:00pm, right in the middle… Continue reading The rainbows will come!!

Diagnosis · Uncategorized

Our New Normal

FPIES, 5 letters that have rocked our little family and completely changed us. I have spent the last several days trying to gather my thoughts, sorting through information, researching and attempting to gain some understanding of what our new “normal” looks like. The past few weeks has been full of doctors appointments, blood work, procedures,… Continue reading Our New Normal