As an allergy mom I always have to be one step ahead, constantly thinking about what could happen or potential dangers for Porter. Surgery is no different. You would think that sending your child into surgery would be one of the safest places for them, from a FPIES aspect, but that is the farthest from the… Continue reading FPIES and Surgery
Planning birthday parties for my kids has been one of my favorite things to do since becoming a parent! I know that right now they could care less about decorations, what their cake looks like or who all is at their party but I just love it. I love picking the theme, colors, spending hours… Continue reading A birthday party….FPIES Style
Well, it happened….we officially had our first FPIES related ER visit. I went 2 years and 3 months as a mother without an Emergency Room trip until Sunday night. This was one of those things I was hoping to never experience as a parent but with FPIES, I knew the chances of an ER visit… Continue reading Our First ER Visit
It has been about a month since we started officially navigating this crazy maze of FPIES. The past month has been a busy one, but it has been one of the best we have had so far. We have gained 3 safes, eating from a pouch consistently, eating from a spoon on occasion and we… Continue reading 1 month in….11 oz up!!!
Monday afternoon we met with our GI Doctor to discuss the upper/lower scopes and what our next steps would be. I knew going into this appointment that we probably wouldn’t get very many answers, if any, and it probably wouldn’t be very eventful. To start out the appointment was at 4:00pm, right in the middle… Continue reading The rainbows will come!!
FPIES, 5 letters that have rocked our little family and completely changed us. I have spent the last several days trying to gather my thoughts, sorting through information, researching and attempting to gain some understanding of what our new “normal” looks like. The past few weeks has been full of doctors appointments, blood work, procedures,… Continue reading Our New Normal
We finally made it to scope day and were very anxious and glad to finally get his behind us. We knew that this could give us the answers that we needed in order to finally have a diagnosis for this sweet boy. Unfortunately since he would be going under general anesthesia we couldn’t feed any… Continue reading Scope Day