We are officially a year into our battle with FPIES. A year ago last week was our first acute reaction and the events of that evening are still etched into my mind like they happened yesterday. Terrifying, this is the only way that I know how to describe it. We had lots of signs leading… Continue reading One Year Ago
It has been about 6 months since we got our official FPIES diagnosis and it has been full of ups and downs. There have been great weeks and some not so great weeks. We have gained some great goods but have still struggled with some reactions. We are hoping that in the next 6 months… Continue reading 6 Month Update – 15 Months Old
Just wanted to give a quick update on Porter. This kid is making HUGE strides in the eating department! 3 months ago Porter wouldn’t put ANYTHING in his mouth and if you tried it resulted in a mega meltdown. I dreaded meal times, it was awful. He screamed when you would even look like you… Continue reading Take that FPIES!!!
As an allergy mom I always have to be one step ahead, constantly thinking about what could happen or potential dangers for Porter. Surgery is no different. You would think that sending your child into surgery would be one of the safest places for them, from a FPIES aspect, but that is the farthest from the… Continue reading FPIES and Surgery
Planning birthday parties for my kids has been one of my favorite things to do since becoming a parent! I know that right now they could care less about decorations, what their cake looks like or who all is at their party but I just love it. I love picking the theme, colors, spending hours… Continue reading A birthday party….FPIES Style
Well, it happened….we officially had our first FPIES related ER visit. I went 2 years and 3 months as a mother without an Emergency Room trip until Sunday night. This was one of those things I was hoping to never experience as a parent but with FPIES, I knew the chances of an ER visit… Continue reading Our First ER Visit
It has been about a month since we started officially navigating this crazy maze of FPIES. The past month has been a busy one, but it has been one of the best we have had so far. We have gained 3 safes, eating from a pouch consistently, eating from a spoon on occasion and we… Continue reading 1 month in….11 oz up!!!